Posts about the technology used to manage data for SCARD
One of the goals of Skin Cancer Audit and Research Data Inc is to establish a data lake of skin cancer treatments as well as processed results available in a database.
A database and a data lake are both data storage systems, but they have different architectures and use cases.
Deidentified records are a commonly used approach in medical research to protect the privacy of individuals whose data is being used. In Australia, the National Health and Medical Research Council (NHMRC) provides guidelines for using deidentified data in research.
The first publication about SCARD was in the International Journal of Dermatology in a paper called “Measuring Performance in skin cancer practice: the SCARD Initiative.”